Topeka Independent Living Resource Center

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Futures 2040 logo

MTPO to Unveil Futures 2040 Plan Recommendations

5:30 to 7 p.m., Wednesday, May 3, 2017
Topeka and Shawnee County Public Library’s Marvin Auditorium Room No.101B,
1515 SW 10th Ave., Topeka, KS 66605

This will be an excellent opportunity to learn what major transportation projects are being planned for the Topeka region and to share what you think about it with community leaders.

The plan recommendations are also available online at the MTPO website at www.topekampo.org.

TILRC George Wolf Youth Internship Program - A Paid Job Opportunity for Students

Picutured ia a progression of man evolving from a primative primate to a man in a wheelchairspace

Three mornings a week, June 26 through August 4, 2017

We are seeking youth with and without disabilities between the ages of 14 and 19 to participate in this exciting work opportunity. Get paid while working with other kids your age to help improve your community! Learn about Disability Rights and become part of the Independent Living Movement!

Learn more about the program | Download an application

FYI, disability rights advocates!

For those of you who are concerned about what’s happening with the ACA "Repeal and Replace" and Medicaid "Reform" in Congress, this timely alert from the American Association of People with Disabilities (AAPD) provides up-to-date information on what may be in store when Congress returns to work later this month. The next couple of weeks are an opportune time to try to meeting with your Congressional representatives while they are home during the recess. The alert offers numerous avenues for grassroots advocacy you may choose to share your concerns with policymakers.

Action Alert! The Harmful Health Care Bill is Coming Back!

newspaper News of Interest


What Changed in the Health Repeal Plan to Win Over the Freedom Caucus

... An amendment drafted by Tom MacArthur, a New Jersey congressman, would keep much of the American Health Care Act in place. But it would set up a waiver program that would allow states to apply to eliminate three major insurance regulations established by Obamacare. ...

... Broadly speaking, states with such waivers would be worse for Americans with more complex health care needs, but would have lower insurance premiums for people without a history of illness. Here are the rules that states could apply to waive under the new proposal. ...

Read the full story on our Federal Issues News page

Severe Shortage Of Home Health Workers Robs Thousands Of Proper Care

... The emerging crisis is driven by low wages — around $10 an hour, mostly funded by state Medicaid programs — and a shrinking pool of workers willing to perform this physically and emotionally demanding work: helping people get in and out of bed, go to the bathroom, shower, eat, participate in activities, and often dealing with challenging behaviors. ...

Read the full story on our Health/Long-term Services News page

New Uber-like ride-hailing service helps riders with disabilities in KC

... The one-year pilot project enables riders to use a cellphone app to hail taxis. While the core of the service was built with the mobility of people with disabilities in mind, it is open to the general public to use, too. ...

Read the full story on our Transportation News page

New to the TILRC Website:

Independent Living: Resources and Funding Strategies for Making Homes Accessible - This article from the MoneyGeek website provides an overview of how much some types of renovations cost, tips on where to find help to pay for remodeling projects and expert advice about what types of projects make sense.

Deafwebsites.com is a compendium of online information for deaf awareness, deaf culture and deaf resources

Disability Integration Act (S 910) - This ground-breaking legislation will finally, truly support full implementation and compliance with the U.S. Supreme Court’s ADA, Olmstead requirements that mandate effective home and community service and support alternatives to nursing facilities and other institutions. DIA requires both public and private providers of long term care to provide a home and community alternative to any institutional benefit. (DIA Summary)


LET US HELP YOU ACHIEVE YOUR INDEPENDENT LIVING GOALS!

If you are a TILRC consumer you may already know how we help people who want to transition from an institution, like a nursing facility, back into the community or how we help folks get the attendant care services they need through the Medicaid Home and Community Based Waiver Programs, but you may not be aware of all the other ways we help people with disabilities maintain or increase their independence. Learn more about how our advocates can help you be more independent in many aspects of daily living.


Job Openings

ONLINE LEARNING OPPORTUNITIES

Christopher & Dana Reeve Foundation Webinar

Introduction to Medicare wiith a Special Emphasis on Coverage for Individuals Living with Paralysis, May 03, 2017, 2-3pm


Accessibility Online Webinars

Accessible Fitness Facilities and Exercise Equipment, May 04, 2017; 1:30pm CT - This session will highlight provisions for exercise equipment along with a basic review of the building and facility elements such as toilet and bathing facilities, locker rooms, and other site amenities.


Work Incentives Seminar Event (WISE) Webinars

Ticket to Work for People with a Mental Illness, May 24, 2017, 2-3:30pm CT


Section 508 Best Practices Webinar Series

Old versus New: Original Section 508 Standards (2000) compared to the Revised Section 508 Standards (2017), May 30, 2017, 12pm


POLICYMAKERS/RESEARCHERS NEED YOUR INPUT:

Paralyzed Veterans of America (PVA) launched AirAccess30.org to collect stories from PVA members and the disability community about their air travel experiences. PVA is working with the broader disability community to bring attention to the successes and failures in air travel for passengers with disabilities. Please share your stories on the site and on social media with the hashtag #ACAA30.

Transportation Access and Experiences Survey -This survey which is designed to improve understanding of accessibility of public transportation for people with disabilities. Responses to the survey will be used to make improvements at regional and national levels.

Wireless Rehabilitation Engineering Research Center (RERC) Survey of User Needs (SUN) for Wireless Technology - The purpose of the SUN is to learn about how people with disabilities use this technology and why some people with disabilities don't use these products. This information is used to let designers know the needs of people of all ages and with all types of abilities, in order of make wireless products easier to use.

George Washington University Disability and Disasters Study - GWU is conducting research about how adults with physical disabilities think about and prepare for disasters. Email emergencyprepstudy@gmail.com or call (202) 994-1887 for more information!

Crutch User Survey - Researchers at the University of South Florida (USF) are looking into ways to improve walking assistance provided by walking crutches in a grant from the National Science Foundation. To help better guide this research and make future crutches more effective and usable, they are asking crutch users for their help in completing a short survey about crutch use.

United Spinal Association Medicare Beneficiary Wheelchair Repair Survey - This survey is being done to gather information on the ability of Medicare beneficiaries to get timely repairs to their wheelchairs. The results will be shared with Medicare officials and policymakers

Wireless RERC Survey on Emergency Communications & People with Disabilities - This survey by the Wireless Rehabilitation Engineering Research Center asks you to share some information about yourself, your experiences, and your preferences for communicating in emergencies. Your answers will be used to improve accessibility of emergency communications for people of all ages and abilities.

ITEM Coalition Survey on Access to Assistive Devices Under Medicare - The Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition is surveying Medicare beneficiaries with disabilities and chronic conditions to assess their experience accessing the devices they need to function independently in everyday life. ITEM is interested in getting feedback from individuals who access medical device and assistive technology in areas where Medicare has implemented a selective provider contracting program known as the DME Competitive Bidding Program, and comparing that feedback to individuals who use devices outside of those areas.

SABE Self Determination Survey - Tell SABE if your local or statewide self advocacy organization's activities help its members to be more self-determined.

SPREAD THE WORD TO END THE WORD! - Help eliminate the use of the R-word in everyday speech.

ACTIVITY CODES FOR PERSONAL ASSISTANT SERVICES (T1019) IN THE MR/DD WAIVER AND PERSONAL SERVICES (S5126) IN THE PD AND TBI WAIVERS, (PDF Format) (Word Format)


ACTIVITY CODES FOR ATTENDANT CARE SERVICES LEVEL I, LEVEL II, AND SELF-DIRECTED IN THE FRAIL ELDERLY WAIVER, (PDF Format) (Word Format)

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