Topeka Independent Living Resource Center

... for a fully integrated and accessible society for all people with disabilities ...


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What You Need to Know: The AHCA and the Threat to Home and Community Based Services!

New federal legislative language called the American Health Care Act (AHCA), will make it much more difficult for people with disabilities to exercise our right to live in the community.

Disability advocates fear the AHCA could actually make big Medicaid cuts to a state.

KDHE Seeks Comments on KanCare Extension

The Kansas Department of Health and Environment (KDHE) is offering the opportunity to attend additional public hearings regarding the state’s proposed one-year extension of the KanCare program, and to provide comments about the extension request application.

Written comments about the KanCare extension request may be sent to this email address: kdhe.kancarerenewal@ks.gov; or may be mailed to: KanCare Renewal, c/o Becky Ross, KDHE-Division of Health Care Finance, 900 SW Jackson, LSOB – 9 th Floor, Topeka, Kansas, 66612.

newspaper News of Interest


ACA repeal bill would cap Medicaid payments below actual costs

The House Republican proposal to revamp Medicaid financing would shrink federal payments to the states significantly over time, increase the uninsured rate and boost uncompensated care costs, experts say. ...

Read the full story on our Federal Issues News page

Kansas Congressman Questions Need To Care For Poor, Touts High-Risk Pools

Kansas freshman Republican Congressman Roger Marshall is getting a baptism of fire as he campaigns for the American Health Care Act — the bill Republicans introduced this week to repeal and replace the Affordable Care Act, better known as Obamacare. ...

Read the full story on our State/Local Issues News page

The Pain That Never Stops

... People with SCI tend to experience neuropathic pain at or below the damaged areas of their spinal cords. Diabetics with severe neuropathy mostly feel it in their lower extremities. The pain is always related to damaged nerves and is a symptom of electrochemical nerve impulses being misdirected, amplified, or electrified. No single painkiller seems to erase it entirely, but there are ways to dampen or dull it —to quiet the constant white noise of pain.. ...

Read the full story on our Health/Long-term Services News page

New to the TILRC Website:

Independent Living: Resources and Funding Strategies for Making Homes Accessible - This article from the MoneyGeek website provides an overview of how much some types of renovations cost, tips on where to find help to pay for remodeling projects and expert advice about what types of projects make sense.

Deafwebsites.com is a compendium of online information for deaf awareness, deaf culture and deaf resources

Disability Integration Act (S 2427) - This ground-breaking legislation will finally, truly support full implementation and compliance with the U.S. Supreme Court’s ADA, Olmstead requirements that mandate effective home and community service and support alternatives to nursing facilities and other institutions. DIA requires both public and private providers of long term care to provide a home and community alternative to any institutional benefit. (DIA Summary)


LET US HELP YOU ACHIEVE YOUR INDEPENDENT LIVING GOALS!

If you are a TILRC consumer you may already know how we help people who want to transition from an institution, like a nursing facility, back into the community or how we help folks get the attendant care services they need through the Medicaid Home and Community Based Waiver Programs, but you may not be aware of all the other ways we help people with disabilities maintain or increase their independence. Learn more about how our advocates can help you be more independent in many aspects of daily living.


Job Openings

ONLINE LEARNING OPPORTUNITIES

ADA Audio Webinar Series

Structured Negotiation - A tool for disability rights, March 21, 2017, 1pm- Learn about Structured Negotiation - an alternative to lawsuits with a two decade track record in successfully resolving disability rights cases. 


Work Incentives Seminar Event (WISE) Webinars

Achieving Financial Independence with Ticket to Work and the ABLE Act, March 22, 2017, 2-3:30pm CT


Accessibility Online Webinars

Vehicles Final Rule, April 06, 2017; 1:30pm CT - This session will include a review of updates to the ADA guidelines for buses and vans and an overview of current research that will inform future rulemakings regarding circulation within a vehicle by people with mobility disabilities and other issues affecting accessibility to transportation vehicles..


POLICYMAKERS/RESEARCHERS NEED YOUR INPUT:

Paralyzed Veterans of America (PVA) launched AirAccess30.org to collect stories from PVA members and the disability community about their air travel experiences. PVA is working with the broader disability community to bring attention to the successes and failures in air travel for passengers with disabilities. Please share your stories on the site and on social media with the hashtag #ACAA30.

Transportation Access and Experiences Survey -This survey which is designed to improve understanding of accessibility of public transportation for people with disabilities. Responses to the survey will be used to make improvements at regional and national levels.

Wireless Rehabilitation Engineering Research Center (RERC) Survey of User Needs (SUN) for Wireless Technology - The purpose of the SUN is to learn about how people with disabilities use this technology and why some people with disabilities don't use these products. This information is used to let designers know the needs of people of all ages and with all types of abilities, in order of make wireless products easier to use.

George Washington University Disability and Disasters Study - GWU is conducting research about how adults with physical disabilities think about and prepare for disasters. Email emergencyprepstudy@gmail.com or call (202) 994-1887 for more information!

Crutch User Survey - Researchers at the University of South Florida (USF) are looking into ways to improve walking assistance provided by walking crutches in a grant from the National Science Foundation. To help better guide this research and make future crutches more effective and usable, they are asking crutch users for their help in completing a short survey about crutch use.

United Spinal Association Medicare Beneficiary Wheelchair Repair Survey - This survey is being done to gather information on the ability of Medicare beneficiaries to get timely repairs to their wheelchairs. The results will be shared with Medicare officials and policymakers

Wireless RERC Survey on Emergency Communications & People with Disabilities - This survey by the Wireless Rehabilitation Engineering Research Center asks you to share some information about yourself, your experiences, and your preferences for communicating in emergencies. Your answers will be used to improve accessibility of emergency communications for people of all ages and abilities.

ITEM Coalition Survey on Access to Assistive Devices Under Medicare - The Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition is surveying Medicare beneficiaries with disabilities and chronic conditions to assess their experience accessing the devices they need to function independently in everyday life. ITEM is interested in getting feedback from individuals who access medical device and assistive technology in areas where Medicare has implemented a selective provider contracting program known as the DME Competitive Bidding Program, and comparing that feedback to individuals who use devices outside of those areas.

SABE Self Determination Survey - Tell SABE if your local or statewide self advocacy organization's activities help its members to be more self-determined.

SPREAD THE WORD TO END THE WORD! - Help eliminate the use of the R-word in everyday speech.

ACTIVITY CODES FOR PERSONAL ASSISTANT SERVICES (T1019) IN THE MR/DD WAIVER AND PERSONAL SERVICES (S5126) IN THE PD AND TBI WAIVERS, (PDF Format) (Word Format)


ACTIVITY CODES FOR ATTENDANT CARE SERVICES LEVEL I, LEVEL II, AND SELF-DIRECTED IN THE FRAIL ELDERLY WAIVER, (PDF Format) (Word Format)

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