FEDERAL ISSUES

Here you will find information on federal activities and programs that affect people with disabilities, including:

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News

Save Money Follows the Person (MFP)! The Time to Act is Now!, By ADAPT

Trump Plan to Lower Drug Prices Could Increase Costs for Some Patients, By Robert Pear, June 02, 2018

States face big costs, coverage losses from Medicaid work requirements, By Harris Meyer, May 23, 2018

Red states find there’s no free pass on Medicaid changes from Trump, By Nathaniel Weixel, May 22, 2018

Trump’s 'America First' agenda on drug pricing could backfire around the world, By Sarah Karlin-Smith and Sarah Wheaton, May 09. 2018

Trump officials abruptly pull back from decision on Medicaid lifetime limits, By Peter Sullivan, May 01, 2018

CMS warns non-expansion states to rethink Medicaid work rules, By Virgil Dickson, May 01, 2018

5 ways policymakers could lower drug prices, By Alex Kacik, April 21, 2018

Ding Dong! The Obamacare Tax Penalty Is(n’t) Dead, By Emily Bazar, February 28, 2018

Evaluations Of Medicaid Experiments By States, CMS Are Weak, GAO Says, By Phil Galewitz, February 23, 2018

Dems seek reversal of nursing home regulatory rollback, By Nathaniel Weixel, February 20, 2018

Trump’s Historic Medicaid Shift Goes Beyond Work Requirements, By Michael Ollove, February 16, 2018

Money Follows the Person program at risk, By Joe Caldwell, PhD, January 08, 2018

How Trump’s HHS nominee’s drug company ‘gamed’ a patent, By Sarah Karlin-Smith, January 08, 2018

How will the tax bill impact health care? 5 experts weigh in, From Making Sen$e, December 14, 2017

GOP Tax Compromise Would Repeal Obamacare’s Individual Mandate, By Zachary Tracer and Natasha Rausch, December 14, 2017

U.S. tax revamp still incomplete as Republicans eye social program cuts, By Amanda Becker, December 08, 2017

Republicans’ tax bill could trigger a $25 billion cut to Medicare, By Tara Golshan, November 14, 2017

Pence’s health care power play, By Adam Cancryn, November 13, 2017

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Legislation

Disability Integration Act (S. 910 & H.R 2472) - This ground-breaking legislation will finally, truly support full implementation and compliance with the U.S. Supreme Court’s Americans with Disabilities Act (ADA), Olmstead requirements that mandate effective home and community service and support alternatives to nursing facilities and other institutions. The Disability Integration Act (DIA) neither creates a new program, nor is it based on or restricted to a particular funding stream. DIA requires both public and private providers of long term care to provide a home and community alternative to any institutional benefit. For example, for the first time, individuals with behavioral and/or mental health disabilities served in non-Medicaid funded institutions would have a right to be afforded an appropriate home and community service and support alternative. If DIA is passed, there will be no more waiting lists for Medicaid (KanCare) HCBS programs, caps on type or scope of service, or limitations on where the service may be provided. (DIA Fact Sheet, DIA Bill Summary)

To contact your U. S. Senators visit: http://www.senate.gov/general/contact_information/senators_cfm.cfm#.

To contact your U. S. House of Representatives member visit: http://www.house.gov/representatives/find/.

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Advocacy Organizations and Informational Resources

The Access Board or Architectural and Transportation Barriers Compliance Board develops minimum guidelines and requirements for standards issued under the Americans with Disabilities Act (ADA) and the Architectural Barriers Act (ABA), develops accessibility guidelines for telecommunications equipment and customer premises equipment under the Telecommunications Act, provides technical assistance on those guidelines, and enforces the Architectural Barriers Act.

The ADA Home Page is the definitive source for information and technical assistance on the Americans with Disabilities Act.

The ADA National Network provides information, guidance and training on the Americans with Disabilities Act (ADA), tailored to meet the needs of business, government and individuals at local, regional and national levels. The ADA National Network consists of ten Regional ADA National Network Centers located throughout the United States that provides personalized, local assistance to ensure that the ADA is implemented wherever possible. The Network is not an enforcement or regulatory agency, but a helpful resource supporting the ADA’s mission to “make it possible for everyone with a disability to live a life of freedom and equality.”

ArchiveADA serves as a comprehensive, online archive of documents and history related to the Americans with Disabilities Act of 1990 (ADA) and the ADA Amendments Act of 2008 (ADAAA).  Here you can find the text of the law, legislative history, congressional hearings, Supreme Court cases, federal regulations, policy and advocacy documents and additional information related to the passage of the original ADA and the ADAAA.

Centers for Medicare & Medicaid Services are the federal agency responsible for administering the Medicare, Medicaid, SCHIP (State Children's Health Insurance), HIPAA (Health Insurance Portability and Accountability Act), CLIA (Clinical Laboratory Improvement Amendments), and several other health-related programs.

Civil Rights Division of the Department of Justice, Disability Rights Section works to achieve equal opportunity for people with disabilities in the United States by implementing the Americans with Disabilities Act (ADA).The Section also carries out responsibilities under Sections 504 and 508 of the Rehabilitation Act.

Department of Housing and Urban Development (HUD) strives to increase home ownership, support community development and increase access to affordable housing free from discrimination.

Department of Health and Human Services (HHS) is the United States government's principal agency for protecting the health of all Americans and providing essential human services, especially for those who are least able to help themselves.

U.S. Equal Employment Opportunity Commission (EEOC) enforces federal civil rights laws dealing with employment and provides oversight and coordination of all federal equal employment opportunity regulations, practices, and policies.

Federal Transit Administration (FTA) is one of 10 modal administrations within the U.S. Department of Transportation. FTA administers federal funding to support a variety of locally planned, constructed, and operated public transportation systems throughout the U.S., including buses, subways, light rail, commuter rail, streetcars, monorail, passenger ferry boats, inclined railways, and people movers.

Guide to the Americans with Disabilities Act (ADA) Standards and Guide to the Architectural Barriers Act (ABA) Standards - these new online guides fron the U. S. Access Board feature illustrated technical guides that explain and clarify requirements of the ADA and ABA standards, answer common questions, and offer best practice recommendations.

HCBSadvocacy.org is a new platform to share information and resources regarding the new Home and Community Based Settings (HCBS) rule and stay informed about steps each state is taking to comply with the new rule. The website is a project of the Association of University Centers on Disabilities, the National Association of Councils on Developmental Disabilities, and the National Disability Rights Network. It includes news and documents from states, advocacy resources, comment deadlines, and links to the final rule and official guidance. Send your news and resources to post to the site to hcbsadvocacy@gmail.com.

Job Accommodation Network or JAN, is a free consulting service designed to increase the employability of people with disabilities by providing individualized worksite accommodations solutions, providing technical assistance regarding the ADA and other disability related legislation, and educating callers about self-employment options.

Medicare is a health insurance program for people age 65 or older, people under age 65 with certain disabilities, and people of all ages with End-Stage Renal Disease.

Medicaid is a Federal/State entitlement program that pays for medical assistance for certain individuals and families with low incomes and resources.

Department of Education's Office of Special Education and Rehabilitative Services (OSERS) understands the many challenges still facing individuals with disabilities and their families. Therefore, OSERS is committed to improving results and outcomes for people with disabilities of all ages. OSERS supports programs that serve millions of children, youth and adults with disabilities.

Social Security Administration pays retirement, disability and survivors benefits to workers and their families and administer the Supplemental Security Income program. We also issue Social Security numbers. See our Quick Guide to all Social Security services.

THOMAS is your one-stop resource for free access to federal legislative information.

Department of Veterans Affairs Vocational Rehabilitation and Employment Program's Website is dedicated to providing information about veteran benefits administered by the Department of Veterans Affairs and the Vocational Rehabilitation and Employment Service to veterans, employers, and the general public.

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Publications

2010 ADA Standards for Accessible Design, This official online version of the standards brings together the information on the scoping and technical requirements for new construction and alterations resulting from the adoption of revised 2010 Standards in the final rules for Title II (28 CFR part 35) and Title III (28 CFR part 36) in one easy-to-access location. The webpage also includes guidance on the 2010 Standards from the revised regulations for Titles II and III. This explanatory information from the regulations addresses the scoping and technical provisions of the 2010 Standards.

ADA Checklist for Polling Places (PDF) - this updated technical assistance publication on polling place accessibility for voters with disabilities from the Department of Justice includes a survey to guide election officials in evaluating the accessibility of facilities used or being considered for use as polling places.

ADA Update: A Primer for Small Businesses is a new U.S. Department of Justice’s Civil Rights Division illustrated guide to help small business owners understand the new and updated requirements of the revised Americans with Disabilities Act (ADA) regulations that took effect on March 15, 2011.

JAN ADA Hot Links and Document Center links you to nearly every free publication on the ADA that is published by the federal government.

The Annual Disability Statistics Compendium is a web-based tool that pools disability statistics published by various federal agencies together in one place. When working on legislative and other matters relating to persons with disabilities, the Compendium will make finding and using disability statistics easier.

Implementing the Affordable Care Act (ACA): A Roadmap for People with Disabilities - this is the first in a series of three reports by the National Council on Disability regarding the implementation, impact, and enforcement of ACA. It provides a roadmap for monitoring the implementation of ACA and for making sure that this important federal law supports the outcomes the disability community has prioritized.

Medicaid Cuts in House ACA Repeal Bill Would Limit Availability of Home- and Community-Based Services - This report explains why the House passed American Health Care Act (AHCA) plan to cap and cut federal Medicaid funding would force many states to make excruciating decisions on whom they cover, the benefits they provide, and how much they pay providers, and likely would jeopardize coverage and care for people who receive Medicaid Home and Community Based Services (HCBS).

Medicaid, the Budget, and Deficit Reduction: The Threat Continues by Families USA, August 2011 - This policy paper explains the threat to Medicaid posed by the debt ceiling compromise and urges advocates to speak up about the importance of Medicaid and the dangers of cutting the program.

Myths and Truths About the “ADA Education and Reform Act” (H.R. 620) - The so-called ADA Education and Reform Act of 2017 is not what its proponents claim and will not achieve its stated goals. Instead, this bill undermines the very purpose of the landmark civil rights law, the Americans with Disabilities Act (ADA), and harms people with disabilities. This fact sheet addresses and dispels the myths and misinformation about H.R. 620.

National Disability Policy: A Progress Report, October 2014 - The National Council on Disability (NCD) 2014 Progress Report focuses on seven key areas: the Convention on the Rights of People with Disabilities (CRPD), employment access and inclusion, subminimum wage, education outcomes, Medicaid managed care, mental health care, and data trends in disability policy. The report identifies opportunities to promote public policies that contribute to a more inclusive environment.

National Disability Policy: A Progress Report, October 2011 - in this report, the National Council on Disability (NCD) assesses the current state of people with disabilities in America and how emerging trends and government policies are impacting the quality of their lives. The report offers a broad range of recommendations for reforms designed to enhance the independence and self-sufficiency of people with disabilities.

The Patient Protection and Affordable Care Act Summary by Kaiser Family Foundation, April 2010 - The summary of the new law, and changes made to the law by subsequent legislation, focuses on provisions to expand coverage, control health care costs, and improve health care delivery system.

Power in Numbers: A Profile of American Voters with Disabilities - this first of its kind survey, by the National Youth Transitions Collaborative, examines the political impact of of people with disabilities, their families and caregivers. The results reveal information about the political views, advocacy trends and partisanship of people with disabilities.

Restriping Parking Spaces - This U.S. Department of Justice compliance brief provides information about the features of accessible car and van parking spaces and how many accessible spaces are required when parking facilities are restriped.

Fact sheets on the Revised ADA Regulations Implementing Title II and Title II (These final rules will take effect March 15, 2011):

Service Animals and Emotional Support Animals: Where are they allowed and under what conditions? - This guide provides an overview of how major Federal civil rights laws govern the rights of a person requiring a service or emotional support animal.

Summary of Key Changes in Revised ADA Regulations - The Southeast ADA Center, one of ten regional resources in the DBTAC National Network of ADA Centers, has put together this summary of key changes about the revised and expanded regulations implementing the Americans with Disabilities Act (ADA) that took effect on March 15, 2011.

The Americans with Disabilities Act & Other Federal Laws Protecting the Rights of Voters with Disabilities - This publication provides technical assistance on federal laws that protect the rights of voters with disabilities, including the Americans with Disabilities Act (ADA), the Voting Rights Act, the National Voter Registration Act and the Help America Vote Act.

Voters with Disabilities: More Polling Places Had No Potential Impediments Than in 2000, but Challenges Remain, GAO-09-685, June 2009 - This report by the U.S. Government Accountability Office (GAO) finds that access for voters with disabilities has improved since the 2000 election, but many problems remain.

REPEAL AND REPLACE OF HEALTH-RELATED TAX POLICY

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