Topeka Independent Living Resource Center

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The new Delaware Valley Independent Living Resource Center in Horton, Kansas is currently seeking to fill an Independent Living Services Support Receptionist position. If you are looking for an opportunity to work in an exciting career with paid leave and health insurance benefits, contact Evan Korynta at 785-233-4572/1-800-443-2207.

If you would like to serve as a volunteer or board member for the Delaware Valley ILRC send an email of interest to Evan.

newspaper News of Interest


Ranking Names Best States For Disability Services

An annual ranking of states offering the best services for people with intellectual and developmental disabilities reveals a familiar but evolving landscape.

The analysis of disability services in all 50 states and the District of Columbia being released Thursday by United Cerebral Palsy finds top performers spanning the map. ...

Read the full story on our Health/Long-term Services News page

Brownback signs law expanding autism coverage

... “We’re very excited that it passed. It didn’t go as far as we hoped that it would, but we see this as a very important step forward,” said Michael Wasmer, a spokesman for the advocacy group Autism Speaks. ...

Read the full story on our State/Local Issues News page

Even After Doctors Are Sanctioned or Arrested, Medicare Keeps Paying

... "If you've been suspended or terminated in one of the federal programs...I would think that you'd be suspended in the other programs, just as a basis of good practice," said Louis Saccoccio, chief executive of the National Health Care Anti-Fraud Association. ...

... Part B payments to doctors were released last week for the first time. ...

... But Medicare has long had access to the information. "They're the ones doing the paying," Saccoccio said. ...

Read the full story on our Federal Issues News page

New to the TILRC Website:

Guide to the Americans with Disabilities Act (ADA) Standards and Guide to the Architectural Barriers Act (ABA) Standards - these new online guides fron the U. S. Access Board feature illustrated technical guides that explain and clarify requirements of the ADA and ABA standards, answer common questions, and offer best practice recommendations.

TILRC's We The People Newletter - The latest issue of our newsletter in now available online.

Dangerous Use of Seclusion and Restraints in Schools Remains Widespread and Difficult to Remedy: A Review of Ten Cases - This report documents 10 cases where students have experienced restraint or seclusion at school and concludes that widespread use of this practice is putting students with disabilities at risk and current laws offer families little recourse.


LET US HELP YOU ACHIEVE YOUR INDEPENDENT LIVING GOALS!

If you are a TILRC consumer you may already know how we help people who want to transition from an institution, like a nursing facility, back into the community or how we help folks get the attendant care services they need through the Medicaid Home and Community Based Waiver Programs, but you may not be aware of all the other ways we help people with disabilities maintain or increase their independence. Learn more about how our advocates can help you be more independent in many aspects of daily living.


Job Openings

ONLINE LEARNING OPPORTUNITIES

LEAD Center Webinars

Section 503: Connecting Job seekers with Disabilities and Federal Contractors through the Workforce Development System, April 23, 2014, 2pm CDT


WISE Webinar Series

Working for Yourself with Ticket to Work, April 23, 2014, 2-3:30pm CT


National Spinal Cord Injury Association Webinars

Service Animals and You, April 30, 2014, 2-3pm CDT


AccessibilityOnline Webinar Series

Open Question and Answer Session: Architectural Barriers Act Accessibility Standards for Trails, Camping and Picnic Facilities, Viewing Areas, and Beach Access Routes, May 01, 2014, 1:30-3pm CT


Southeast ADA Center "ADA Live!" Radio Show

Episode 8: Emergency Shelter Preparedness discusses the rights of people with disabilities in emergency shelters, May 07, 2014, Noon-12:30pm CT


ADA Accessible Technology Webinar Series

Web Accessibility Analytics and Open Source Tools for Inspecting and Auditing Web Resources for Accessibility, May 22, 2014, 1pm CT


POLICYMAKERS/RESEARCHERS NEED YOUR INPUT:

Coalition for Whole Health Survey of State Advocates will be used to inform health reform implementation and parity enforcement activities, identify how they can be most helpful to state-level partners, and to gather necessary information to share with federal officials to ensure that individuals with mental health and substance use disorder needs are able to access appropriate health care. (deadline for responding is April 30th)

ESPA Emergency Preparedness Survey  - Easter Seals Project ACTION (ESPA) is collecting information from communities around the country regarding plans for the evacuation of people with disabilities and frail older adults in the event of an emergency. ESPA would like to learn what your community has done in this regard, and especially how people with disabilities and frail older adults, or organizations that represent these groups were included in the planning process.

Veterans with TBI Health Information Needs Study - The Model Systems Knowledge Translation Center is seeking veterans who have sustained a traumatic brain injury (TBI) while serving on active duty for a study of health information needs. The study includes a 60-minute telephone interview and questionnaire. Qualified participants will be compensated $75 for their time. For questions or to volunteer, call 202/403-5600 or email msktc@air.org.

Transportation and Social Participation Survey - The Rocky Mountain ADA Center is conducting a survey of individuals with disabilities to understand the impact of access to transportation on social opportunities. The survey is open to individuals with disabilities as well as their advocates, and is available in English and Spanish. Results from this survey will be used to inform the training, materials, and telephone consultation services available from the Rocky Mountain ADA Center and other members of the ADA National Network. Participants will be eligible to win a $25 gift card. For questions, contact Keith Christensen at 435/797-0507

Survey of Cognitive Disability and Technology - The Rehabilitation Engineering Research Center for Cognitive Rehabilitation (RERC-ACT) and its partner Beneficial Designs are conducting a survey to gather stakeholder feedback on what makes technology difficult or easy for people with cognitive disabilities to use. People with expertise in cognitive disabilities, including caretaking or research, may take the survey online. Individuals with cognitive disabilities are invited to schedule a structured telephone interview about their technology use and opinions by contacting Seanna Kringen at 831/685-4798 or seanna@beneficialdesigns.com.

New Mobility Airline Accessibility Survey - We’ve seen the stories about wheelchair users being mistreated by TSA agents or forced to crawl across the tarmac. Is this typical, or are these incidents few and far between? Are some airlines better than others for wheelchair users? And how often is equipment damaged or destroyed by airlines? Please take our short survey so that together we can explore the state of air travel for wheelchair users today — and how it can be improved.

The NIDRR-funded Rehabilitation Engineering Research Center for Wireless Technologies (Wireless RERC) is conducting a survey to understand the accessibility and usefulness of Wireless Emergency Alerts (WEA). These alerts are automatic, provide AMBER alerts and weather emergency notifications, and do not require registration or a subscription to receive them. Participants who complete the survey may be eligible for one of two $100 Amazon gift cards. To take the survey by phone, please email DeeDee Bennett  or call 404/385-4618.

Institute on Disability, University of New Hampshire survey to improve scientific understanding of the health outcomes and health care needs of people with intellectual disabilities.

Empirical Examination of Caregiver Empowerment, Appraisal, and Depressive Symptoms among Siblings of Individuals with Intellectual and Developmental Disabilities Survey - Dr. Anne F. Farrell, HDFS, of the University of Connecticut is conducting a survey of siblings of individuals with intellectual and developmental disabilities who are 18 years old or older and living in the United States. If you provide care and support to brothers and sisters with I/DD you are invited to take this online survey which explores empowerment, thoughts and beliefs and mood among adult siblings.

Wireless RERC Survey on Emergency Communications & People with Disabilities - This survey by the Wireless Rehabilitation Engineering Research Center asks you to share some information about yourself, your experiences, and your preferences for communicating in emergencies. Your answers will be used to improve accessibility of emergency communications for people of all ages and abilities.

ITEM Coalition Survey on Access to Assistive Devices Under Medicare - The Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition is surveying Medicare beneficiaries with disabilities and chronic conditions to assess their experience accessing the devices they need to function independently in everyday life. ITEM is interested in getting feedback from individuals who access medical device and assistive technology in areas where Medicare has implemented a selective provider contracting program known as the DME Competitive Bidding Program, and comparing that feedback to individuals who use devices outside of those areas.

SABE Self Determination Survey - Tell SABE if your local or statewide self advocacy organization's activities help its members to be more self-determined.

Access to 9-1-1 for People with Disabilities Survey

PECS Survey for Parents of Children with Autism - This survey askes asks parents to describe their children's Picture Exchange Communication System (PECS) training, their children's PECS use, and their own attitudes towards PECS.

Topeka ADA Advisory Council Members Needed!

SPREAD THE WORD TO END THE WORD! - Help eliminate the use of the R-word in everyday speech.

ACTIVITY CODES FOR PERSONAL ASSISTANT SERVICES (T1019) IN THE MR/DD WAIVER AND PERSONAL SERVICES (S5126) IN THE PD AND TBI WAIVERS, (PDF Format) (Word Format)


ACTIVITY CODES FOR ATTENDANT CARE SERVICES LEVEL I, LEVEL II, AND SELF-DIRECTED IN THE FRAIL ELDERLY WAIVER, (PDF Format) (Word Format)

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