Topeka Independent Living Resource Center

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How will the tax bill impact health care? 5 experts weigh in

As House and Senate negotiators put the finishing touches on their tax plan, one thing is clear: the legislation will likely have a big impact on health care. The tax bill could repeal the individual mandate — a centerpiece of the Affordable Care Act — and could also trigger cuts in Medicaid and Medicare funding down the line. We reached out to economists, health care analysts and other experts for answers to key questions on the bill’s impact on health policy ...

Read the full story on our Federal Issues Services News page

Experts Tell Congress How To Cut Drug Prices

... The report, “Making Medicines Affordable: A National Imperative,” identifies eight steps to cut drug prices. It also provides a list of specific “implementation actions” for various federal agencies, including Congress, the Federal Trade Commission and the U.S. Departments of Justice and Health and Human Services. ...

Read the full story on our Health/Long-term Services News page

Flying the Unfriendly Skies

... How is it that in the year 2017, in the age of one-day Amazon Prime delivery of damn near anything you desire, a full 27 years since the passage of the Americans with Disabilities Act, that airplanes in America are not wheelchair accessible? Why is it so hard to transport wheelchairs safely? What kind of recourse does someone like me have to hold the airlines accountable when they break what are essentially my legs? What is being done to address what seems to be a systemic issue within the industry?

To answer those questions, I tried to finagle my way behind the curtain of the airline industry, chat with wheelchair travelers with far more expertise than my own, and take a look back more than three decades to see where this pattern of negligence began and what, if anything, is being done to address it. ...

Read the full story on our Recreation, Travel and Entertainment News page

New to the TILRC Website:

Right to Emotional Support Animals in "No Pet" Housing - This factsheet by the Bazelon Center for Mental Health Law explains a renter with a disability's right to an emmotional support animal and information to help in requestioning a rasonable accommodation.

Myths and Truths About the “ADA Education and Reform Act” (H.R. 620) - The so-called ADA Education and Reform Act of 2017 is not what its proponents claim and will not achieve its stated goals. Instead, this bill undermines the very purpose of the landmark civil rights law, the Americans with Disabilities Act (ADA), and harms people with disabilities. This fact sheet addresses and dispels the myths and misinformation about H.R. 620.

Disability Integration Act (S 910) - This ground-breaking legislation will finally, truly support full implementation and compliance with the U.S. Supreme Court’s ADA, Olmstead requirements that mandate effective home and community service and support alternatives to nursing facilities and other institutions. DIA requires both public and private providers of long term care to provide a home and community alternative to any institutional benefit. (DIA Summary)


LET US HELP YOU ACHIEVE YOUR INDEPENDENT LIVING GOALS!

If you are a TILRC consumer you may already know how we help people who want to transition from an institution, like a nursing facility, back into the community or how we help folks get the attendant care services they need through the Medicaid Home and Community Based Waiver Programs, but you may not be aware of all the other ways we help people with disabilities maintain or increase their independence. Learn more about how our advocates can help you be more independent in many aspects of daily living.


Job Openings

Now Hiring! TILRC currently has job opening for these full time positions!

Executive Assistant

WORK Program Coodinator

ONLINE LEARNING OPPORTUNITIES

Accessibility Online Webinars

Accessible Alterations (A Refresher), January 04, 2018; 1:30pm CDT


Work Incentives Seminar Event (WISE) Webinars

Ticket to Work: The Pathway to Financial Independence, January 24, 2018, 2-3:30pm CT


POLICYMAKERS/RESEARCHERS NEED YOUR INPUT:

RTC: Rural is conducting interviews for a study on how young adults with disabilities participate in social and community events in rural areas. Participants must be 18 to 34 years old, be in or from a town of less than 10,000 inhabitants, and have had an IEP in high school and/or a current disability. Participation involves a 1 to 2 hour interview and participants will be compensated for their time. For more information, contact Rayna Sage, PhD, at 406/243-5233 or rayna.sage@umontana.edu.

Research Participants being recruited by KU for a study on participation in volunteer activities by people with mobility-limiting impairments. For more information contact Alicia Sellon at aliciasellon@ku.edu, 785-864-4778.

Paralyzed Veterans of America (PVA) launched AirAccess30.org to collect stories from PVA members and the disability community about their air travel experiences. PVA is working with the broader disability community to bring attention to the successes and failures in air travel for passengers with disabilities. Please share your stories on the site and on social media with the hashtag #ACAA30.

Transportation Access and Experiences Survey -This survey which is designed to improve understanding of accessibility of public transportation for people with disabilities. Responses to the survey will be used to make improvements at regional and national levels.

Crutch User Survey - Researchers at the University of South Florida (USF) are looking into ways to improve walking assistance provided by walking crutches in a grant from the National Science Foundation. To help better guide this research and make future crutches more effective and usable, they are asking crutch users for their help in completing a short survey about crutch use.

United Spinal Association Medicare Beneficiary Wheelchair Repair Survey - This survey is being done to gather information on the ability of Medicare beneficiaries to get timely repairs to their wheelchairs. The results will be shared with Medicare officials and policymakers

Wireless RERC Survey on Emergency Communications & People with Disabilities - This survey by the Wireless Rehabilitation Engineering Research Center asks you to share some information about yourself, your experiences, and your preferences for communicating in emergencies. Your answers will be used to improve accessibility of emergency communications for people of all ages and abilities.

ITEM Coalition Survey on Access to Assistive Devices Under Medicare - The Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition is surveying Medicare beneficiaries with disabilities and chronic conditions to assess their experience accessing the devices they need to function independently in everyday life. ITEM is interested in getting feedback from individuals who access medical device and assistive technology in areas where Medicare has implemented a selective provider contracting program known as the DME Competitive Bidding Program, and comparing that feedback to individuals who use devices outside of those areas.

SABE Self Determination Survey - Tell SABE if your local or statewide self advocacy organization's activities help its members to be more self-determined.

SPREAD THE WORD TO END THE WORD! - Help eliminate the use of the R-word in everyday speech.

ACTIVITY CODES FOR PERSONAL ASSISTANT SERVICES (T1019) IN THE MR/DD WAIVER AND PERSONAL SERVICES (S5126) IN THE PD AND TBI WAIVERS, (PDF Format) (Word Format)


ACTIVITY CODES FOR ATTENDANT CARE SERVICES LEVEL I, LEVEL II, AND SELF-DIRECTED IN THE FRAIL ELDERLY WAIVER, (PDF Format) (Word Format)

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