Topeka Independent Living Resource Center

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"Grassroots Advocacy from Kansas Soil"
Hall Center for the Humanities Disability Studies Seminar

by TILRC ED Ami Hyten

Thursday November 30, 2017 / 3:00 – 4:30 PM

Hall Center for the Humanities, Seminar Room 1 / 900 Sunnyside Avenue / University of Kansas / Lawrence, KS 66045

Contact Ray Mizumura-Pence for more information: 785.304.2966 or

newspaper News of Interest

KanCare Concerns A Challenge For Officials Seeking To Renew Privatized Medicaid Plan

... Kansas officials seeking to renew KanCare are asking people covered by the privatized Medicaid program to trust them to make it better.

In a series of recent public hearings, state officials have assured providers and beneficiaries that KanCare 2.0 will fix the administrative and service-delivery problems that have plagued the current program since its inception. ...

Read the full story on our State/Local Issues News page

597 days. And still waiting.

10,000 people died in the past year while stuck in a backlog of judges’ disability cases. What will happen to Joe Stewart? ...

... The simplest explanation is that there isn’t enough money. The Social Security Administration’s budget has been roughly stagnant since 2010, while the number of people receiving retirement and disability benefits has risen by more than 7 million, despite a slight decline in the disability rolls beginning in 2015 as some beneficiaries reached retirement age.

The more complicated explanation, however, also includes fewer supporting staff members helping judges. A recession that increased the number of applications and appeals. A new regulation that requires additional medical evidence, lengthening the files judges have to read. ...

Read the full story on our Benefits News page

Republicans’ tax bill could trigger a $25 billion cut to Medicare

... Republicans, who are in the midst of passing what is shaping up to be a massive tax cut — in addition to increasing defense spending and non-defense spending — are having a difficult time finding ways to taper the deficit.

Either way, entitlement reform is nigh.

Read the full story on our Federal Issues Services News page

New to the TILRC Website:

Right to Emotional Support Animals in "No Pet" Housing - This factsheet by the Bazelon Center for Mental Health Law explains a renter with a disability's right to an emmotional support animal and information to help in requestioning a rasonable accommodation.

Myths and Truths About the “ADA Education and Reform Act” (H.R. 620) - The so-called ADA Education and Reform Act of 2017 is not what its proponents claim and will not achieve its stated goals. Instead, this bill undermines the very purpose of the landmark civil rights law, the Americans with Disabilities Act (ADA), and harms people with disabilities. This fact sheet addresses and dispels the myths and misinformation about H.R. 620.

Disability Integration Act (S 910) - This ground-breaking legislation will finally, truly support full implementation and compliance with the U.S. Supreme Court’s ADA, Olmstead requirements that mandate effective home and community service and support alternatives to nursing facilities and other institutions. DIA requires both public and private providers of long term care to provide a home and community alternative to any institutional benefit. (DIA Summary)


If you are a TILRC consumer you may already know how we help people who want to transition from an institution, like a nursing facility, back into the community or how we help folks get the attendant care services they need through the Medicaid Home and Community Based Waiver Programs, but you may not be aware of all the other ways we help people with disabilities maintain or increase their independence. Learn more about how our advocates can help you be more independent in many aspects of daily living.

Job Openings

Now Hiring! TILRC currently has job opening for these full time positions!

Executive Assistant

WORK Program Coodinator


Disability and Aging Collaborative Webinar

Trends in 1115 Waivers Impacting Seniors and People with Disabilities, October 13, 2017, 1 -2:15pm CDT - This webinar will explore the basics of 1115 demonstrations, discuss how recent proposals could impact older adults and people with disabilities, and present tactics advocates can use to track and weigh in on new proposals.

ADA Audio Webinar Series

Parsley or Cilantro? Making Sure Your ADA Self Evaluation and Transition Plan are Seasoned with the Right Ingredients, October 17, 2017

Work Incentives Seminar Event (WISE) Webinars

Achieving Financial Independence with Ticket to Work and an ABLE Account, October 25, 2017, 2-3:30pm CT

Accessibility Online Webinars

Harmonization between the ADA Standards and the IBC/ANSI A117.1, November 02, 2017; 1:30pm CDT

Section 508 Best Practices Webinar Series

W3C WCAG 2.0 Resources, November 28, 2017, 12pm - This session will review the robust technical assistance supporting the use of the WCAG 2.0 Success Criteria provided by the W3C (World Wide Web) Web Accessibility Initiative.


RTC: Rural is conducting interviews for a study on how young adults with disabilities participate in social and community events in rural areas. Participants must be 18 to 34 years old, be in or from a town of less than 10,000 inhabitants, and have had an IEP in high school and/or a current disability. Participation involves a 1 to 2 hour interview and participants will be compensated for their time. For more information, contact Rayna Sage, PhD, at 406/243-5233 or

Research Participants being recruited by KU for a study on participation in volunteer activities by people with mobility-limiting impairments. For more information contact Alicia Sellon at, 785-864-4778.

Paralyzed Veterans of America (PVA) launched to collect stories from PVA members and the disability community about their air travel experiences. PVA is working with the broader disability community to bring attention to the successes and failures in air travel for passengers with disabilities. Please share your stories on the site and on social media with the hashtag #ACAA30.

Transportation Access and Experiences Survey -This survey which is designed to improve understanding of accessibility of public transportation for people with disabilities. Responses to the survey will be used to make improvements at regional and national levels.

Crutch User Survey - Researchers at the University of South Florida (USF) are looking into ways to improve walking assistance provided by walking crutches in a grant from the National Science Foundation. To help better guide this research and make future crutches more effective and usable, they are asking crutch users for their help in completing a short survey about crutch use.

United Spinal Association Medicare Beneficiary Wheelchair Repair Survey - This survey is being done to gather information on the ability of Medicare beneficiaries to get timely repairs to their wheelchairs. The results will be shared with Medicare officials and policymakers

Wireless RERC Survey on Emergency Communications & People with Disabilities - This survey by the Wireless Rehabilitation Engineering Research Center asks you to share some information about yourself, your experiences, and your preferences for communicating in emergencies. Your answers will be used to improve accessibility of emergency communications for people of all ages and abilities.

ITEM Coalition Survey on Access to Assistive Devices Under Medicare - The Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition is surveying Medicare beneficiaries with disabilities and chronic conditions to assess their experience accessing the devices they need to function independently in everyday life. ITEM is interested in getting feedback from individuals who access medical device and assistive technology in areas where Medicare has implemented a selective provider contracting program known as the DME Competitive Bidding Program, and comparing that feedback to individuals who use devices outside of those areas.

SABE Self Determination Survey - Tell SABE if your local or statewide self advocacy organization's activities help its members to be more self-determined.

SPREAD THE WORD TO END THE WORD! - Help eliminate the use of the R-word in everyday speech.



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